After giving personal testimony at the CDC in Atlanta, Georgia in April and at the CFS Advisory Committee at the Department of Health and Human Services in Washington, DC in May, I had the desire to start a blog to share my life -- the good, the bad, and the ugly -- so that more people could better understand CFIDS and living with chronic illness, in general. My main hope was that my family and friends would read my blog.
Never in my wildest dreams did I expect that in one month there would be over 1,000 hits to my blog from the all over the United States and the world, including Canada, Australia, Europe, and Asia. (Now I'm just waiting for South America, Africa, and Antarctica so that all seven continents are covered!)
I also did not anticipate that I would write as frequently as I do; however, the comments posted on my blog from others have inspired me to keep writing. This blog has given me a vehicle to reach more people than I ever imagined, and I'm going to keep writing as long as one person keeps reading.
Fighting for CFIDS awareness has given me a sense of empowerment. Blogging, writing to members of the government and media, going to Capitol Hill to lobby, and giving public testimony help me feel that my being sick all the time is not without meaning. I have a purpose and want to speak up especially for those with the disease who are too weak or ill to speak.
I am trying to make a difference.
Please feel free to share my blog with others. Thank you for reading!