tag:blogger.com,1999:blog-2962097063569112990.post1836021012997226782..comments2023-06-26T04:01:30.623-05:00Comments on Alysons CFIDS Blog: Giant Potholes in the Road of Lifealysonhttp://www.blogger.com/profile/12965588211524276512noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-2962097063569112990.post-36571360035273008642013-07-23T14:25:18.348-05:002013-07-23T14:25:18.348-05:00Hi cinderkeys - Thanks for checking in! Yes, the ...Hi cinderkeys - Thanks for checking in! Yes, the potholes have become much smaller both figuratively and literally. I'm doing really well these days, and the city repaired most of the potholes on the street I wrote about! :) alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-51305993292827731262013-07-09T00:39:19.190-05:002013-07-09T00:39:19.190-05:00Hi,
I'm four months behind on all the blogs I...Hi,<br /><br />I'm four months behind on all the blogs I follow, so I only read this now. I'm so sorry. Hopefully the potholes have become smaller since you wrote this.cinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-57737581179752948332013-03-25T19:56:01.100-05:002013-03-25T19:56:01.100-05:00Thank you, Alyson! May I ask, how much CoQ10 do y...Thank you, Alyson! May I ask, how much CoQ10 do you take? I am going to the Cleveland Clinic in two weeks. Had my EMG today (everything looked fine) and the neurologist was very nice. Would it be a bad idea to preemptively start taking a lot of CoQ10 (maybe 2000 mg, liquid form) to see if it helps me? I do not know if that would affect my testing. The neurologist doesn't think my issue is mitochondrial. Well, I cannot walk anywhere. I am going to sit on my couch the next 60 years of my life unless I get some help.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-34699079911386019622013-03-24T11:40:12.305-05:002013-03-24T11:40:12.305-05:00Hi readyforwhat7 - Thanks for visiting my blog! I...Hi readyforwhat7 - Thanks for visiting my blog! I'm sorry that you're dealing with so much illness. <br /><br />Considering all that is on my plate, I'm actually doing pretty well mentally and physically these days. Thank you for asking! While I have not received my nuclear DNA test results yet, I received my mitochondrial DNA results in October. You can read about them in my Sunday, October 21, 2012 post "Mitochondrial Disease Testing Update." <br /><br />I have received my CoQ10 results. The test showed that I had low CoQ10 levels, so the mito specialist recommended that I go on a high dose of CoQ10 per day. It took a few months before I started noticing any difference, but it has really helped. I'll be writing about CoQ10 in more detail in a future post. <br /><br />By the way, my email is cfidsalyson@sbcglobal.net. I wish you the best! alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-9747932623596217852013-03-22T19:13:49.397-05:002013-03-22T19:13:49.397-05:00Hi, me again. I wondered, have you gotten your DN...Hi, me again. I wondered, have you gotten your DNA or mitochondrial test results back yet? Did they find anything with that? It's devastating to think we just have to live like this. I work 15 hours a week and can't even handle it. Thanks.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-70615328160728125362013-03-21T16:32:05.568-05:002013-03-21T16:32:05.568-05:00Hi, I can relate to you 100%. I am getting an EMG...Hi, I can relate to you 100%. I am getting an EMG on Monday and will be travelling to get a thorough check up at Cleveland Clinic in three weeks. How are you now? Do you have any updates? Please let me know. Did you get the results from your genetic testing? I am sorry about your marriage. That is hard, but I am sure dealing with your illness is just as hard (if not harder?). You will get through it, just as you get through every single day with this miserable illness. My e-mail address is r e a d y f o r w h a t 7 @ the company that Marissa Mayer works at up in Seattle, WA. Good luck to you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-2163701540447467172013-03-12T12:40:15.475-05:002013-03-12T12:40:15.475-05:00Thanks upnorth and Patrick. It's been about a...Thanks upnorth and Patrick. It's been about a month since the divorce was finalized but about three months since we actually separated. I've been checking in regularly with my doctor and a psychologist to make sure I'm doing ok. I think I've been handling things pretty well, but it's always nice to get confirmation from professionals. I'm just taking one day at a time! alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-64009332906838204592013-03-04T17:16:24.592-06:002013-03-04T17:16:24.592-06:00I am very very sorry to hear that Alyson. Any kin...I am very very sorry to hear that Alyson. Any kind of life change causes stress, even when we don't feel "stressed" per se. It sounds like you are handling it well. I'm glad to hear that your health has improved lately and I hope you're able to enjoy that. I wish you the best in this new chapter of your life. Thanks for your excellent blogging. Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-22262434603510883052013-03-04T15:13:57.920-06:002013-03-04T15:13:57.920-06:00Oh I'm so sorry to hear this. I have two, tha...Oh I'm so sorry to hear this. I have two, that's right,<br />two friends who are recently separated. It is so hard make marriage work even when healthy. I can barely manage the little social life I do have. Hang in there, you will move one. Don't forget to grieve for what you've lost. Take care Alyson, thinking of you.upnorthhttps://www.blogger.com/profile/04283010424792189579noreply@blogger.com