tag:blogger.com,1999:blog-2962097063569112990.post3544128399325858954..comments2023-06-26T04:01:30.623-05:00Comments on Alysons CFIDS Blog: Lupus or Not?alysonhttp://www.blogger.com/profile/12965588211524276512noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2962097063569112990.post-44589953716737639512011-12-29T17:49:47.473-06:002011-12-29T17:49:47.473-06:00Hi all! Thank you for the comments. I have been t...Hi all! Thank you for the comments. I have been tested for Lyme disease. Fortunately, my ME/CFS doctor is very familiar with Lyme disease. It is my understanding that she has even published research on the disease. <br /><br />I have not been to an infectious disease specialist, per se, but I have been tested for all sorts of things. I know that I often carry high levels of EBV and HHV6, for example. <br /><br />upnorth, after my experience with the dermatologist, I can believe the ENT never palpated your glands. I have found that quite a few doctors either don't take CFS seriously, or they are quick to blame all my symptoms on it (without looking for alternate possibilities). It can get quite frustrating!alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-1631997126510868032011-12-01T21:38:14.092-06:002011-12-01T21:38:14.092-06:00Or a Lyme disease specialist, for that matter. :\ ...Or a Lyme disease specialist, for that matter. :\ It can cause.. pretty much everything you have wrong.<br /><br />a rainbow at nightAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-39857982052639757002011-11-23T19:58:06.601-06:002011-11-23T19:58:06.601-06:00Hiya,
Have you been to see an infectious disease ...Hiya,<br /><br />Have you been to see an infectious disease specialist?<br /><br />jenjijenjihttps://www.blogger.com/profile/05776962738288748721noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-15657443411959193812011-11-23T10:08:56.799-06:002011-11-23T10:08:56.799-06:00I think some Drs. as soon as they see M.E./cfs on ...I think some Drs. as soon as they see M.E./cfs on your chart, write you off. I went to a ENT specialist for my throat/lymph node issues and can you believe he never even palpated my glands???<br /><br />I could tell from the start that he didn't want to take me seriously. He looked in my throat (which was terribly sore that day) and said he saw "nothing". Other drs. and specialists see swollen tonsils, red cressents, blisters, etc.<br /><br />FOr some reason I just though that hair loss was really common with endocrine issues such as adrenal, thryroid, pituitary and hormone issues.<br /><br />Your blood results are interesting...I have a form of neutropenia (low neurtophils) on and off and they believe it is viral in origin....<br /><br />As I said previously, I really hope they find something they can treat that will help with the hairloss and just for you to feel better....let us know what happens.upnorthhttps://www.blogger.com/profile/04283010424792189579noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-6954490932212769402011-11-23T04:55:07.219-06:002011-11-23T04:55:07.219-06:00I would assume you have seen a Lyme Literate Medic...I would assume you have seen a Lyme Literate Medical Doctor to rule out Lyme Disease the test for that is only 50% but you don't even seem to be tested for it and many of your symptoms fit.Joannehttps://www.blogger.com/profile/12905137222286141548noreply@blogger.com