tag:blogger.com,1999:blog-2962097063569112990.post4352310827845600306..comments2023-06-26T04:01:30.623-05:00Comments on Alysons CFIDS Blog: My First Blog Postalysonhttp://www.blogger.com/profile/12965588211524276512noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2962097063569112990.post-52558562895706518022009-06-07T16:38:01.391-05:002009-06-07T16:38:01.391-05:00Thank you for sharing your stories with me. Stay s...Thank you for sharing your stories with me. Stay strong!alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-28920758876353330772009-06-03T20:37:00.681-05:002009-06-03T20:37:00.681-05:00Dear Alyson,
Thank you so much for being strong an...Dear Alyson,<br />Thank you so much for being strong and being a voice and sharing. I am 31 yrs old with CFS and Fibromyalgia. I have an eight year old and 5 yr old. My husband is in the Navy and gone for months at a time. It is so hard sometimes. Hard to get anything done. Hard to get people to understand. And sometimes the hardest part is there is no real answer why we are like this and how we can fix it. I am so tired of telling my kids that mommy is too tired to do things with them. And my husband sometimes just does not understand. <br />I have been trying to get disability for 5 yrs now. Still waiting for another court date. <br />I have been dealing with this for about 10 yrs now and I was diagnosed 5 yrs ago. I also have anxiety, depression, interstitial cystitis, headaches, and allergies. I have been on all the medications and have had numerous medical tests. I am to a point now I try to go to the dr as little as possible. Sometimes dealing with and trying to feel better is exhausting.<br />Stay srong and keep your voice loud and well heard. You are needed. <br />Thank you <br />KristaKrista Phttps://www.blogger.com/profile/08325149834489584775noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-8492752147835227982009-06-03T18:52:35.632-05:002009-06-03T18:52:35.632-05:00Dear Akson, I have Fibromyalgia, and it is someth...Dear Akson, I have Fibromyalgia, and it is something like CFIDS, and I am sick all the time also. I am a little better for right now, but I have spells, and it comes back at least three or four times a year. I have been so sick, there is no word for it. I had to stop working, because I just could not stand the pain. I wish there was more people get interested in these sickness and do something about it. We need help, I can not hardly do my housework, and if I do anything it gets alot worse. I can not excise either, because the next day I am down in bed, I have had this for 26 years now. I went to doctor and doctors before they found what I had. It is very hard on my family, and my husband. People do not know how you feel. Everybody says you sure look good, but they do not know how sick we are. And I go to bed sick, and get up sick in the mornings. Nobody knows what it is like. Hang in Aktson, we got to keep trying.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-15363358137608668992009-05-29T08:51:09.271-05:002009-05-29T08:51:09.271-05:00Dear Alyson: I am very proud of you for your enor...Dear Alyson: I am very proud of you for your enormous courage and finding the strength to fight for yourself and others to find a cure for CFIDS. I know how much it takes out of you just to survive from day to day. ---Love and blessings, MomAnonymoushttps://www.blogger.com/profile/08053448323920266307noreply@blogger.com