tag:blogger.com,1999:blog-2962097063569112990.post6529657244382257224..comments2023-06-26T04:01:30.623-05:00Comments on Alysons CFIDS Blog: Part III: Almost Normalalysonhttp://www.blogger.com/profile/12965588211524276512noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2962097063569112990.post-3638725367309800122013-11-02T18:15:03.495-05:002013-11-02T18:15:03.495-05:00Hi AM - Thank you for visiting my blog. I'm s...Hi AM - Thank you for visiting my blog. I'm so sorry that you've had to go (and are going) through so much. You're so very right that it's comforting to know we're not alone in our suffering and frustrations on our journeys to recovery. I really hope that you find answers. Don't give up! <br /><br />Hi Hayley-Eszti Szucs - Thanks so much! I've been on 400mg CoQ10 two times per day (800mg total per day) for over a year now. I can't remember exactly how long for sure, but it definitely took me several months before I noticed an improvement. CoQ10 is very expensive, but it's worth it to me because it changed my life. I think of it as more of a medication than a supplement because of how much it helps me. alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-85162121608740477692013-11-02T14:35:04.161-05:002013-11-02T14:35:04.161-05:00I'm sure we can all forgive your absence as yo...I'm sure we can all forgive your absence as you have a pretty good reason behind it! So happy to hear you are doing so well! Can I ask what dosage of CoQ10 you have been taking? I have been taking 30mg for about 8 or 9 months and my energy levels have increased slightly but not enough to make a big enough difference on everyday life. <br />I hope you continue making such great progress. All the best to you!<br />Hayley-Eszti<br /><br />www.hayleyeszti.blogspot.co.ukhayleyesztihttps://www.blogger.com/profile/14517966025318167347noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-29526469676322551912013-11-01T22:55:15.536-05:002013-11-01T22:55:15.536-05:00I noticed that when I added CoQ10 (100 mg. about a...I noticed that when I added CoQ10 (100 mg. about a year ago), I also had an increase in energy. I'm worried yet excited, because on Monday I finally have an appointment with a neurologist. I have so many issues (as I'm sure you understand!) but lately I've had horrible neck pain, migraines, been getting dizzy, snapping awake really early in the morning for no reason, being "out of it" more than usual, having tremors, and more. I saw my chiropractor and my spine is in line so I don't know what's going on. Nothing has changed. I do have known back problems, but my physiatrist is being a pain about ordering an MRI of my neck. I spoke to my rheumatologist about these new odd symptoms and she was nice enough to refer me to a neurologist (even though it took them a month to call me and then at least 2 months to get an appointment). I just hope he takes me seriously (it's not anxiety causing all these symptoms like some doctors think)! Best of all, I lose my insurance around the end of this month. I'm going to try to make it through to January with no coverage but I don't see that working out too well. Sorry for the book I just wrote (lol), I just am glad people on here actually listen to and believe me. Also, I hope it's sort of comforting to you to know you are not alone and by sharing our stories, that we can try to help each other.AMnoreply@blogger.com