tag:blogger.com,1999:blog-2962097063569112990.comments2023-06-26T04:01:30.623-05:00Alysons CFIDS Blogalysonhttp://www.blogger.com/profile/12965588211524276512noreply@blogger.comBlogger691125tag:blogger.com,1999:blog-2962097063569112990.post-3691572582006693322014-07-07T09:22:12.552-05:002014-07-07T09:22:12.552-05:00Hi Alyson! My name is Cameron Von St. James and I ...Hi Alyson! My name is Cameron Von St. James and I had a quick question for you about raising awareness & was wondering if you could please email me when you have a free moment. Thanks! I really hope to hear from you soon and appreciate you taking the time. ☺ cvonstjames AT gmail DOT comAnonymoushttps://www.blogger.com/profile/13224008685151269525noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-15214597562120919742014-03-01T22:02:45.019-06:002014-03-01T22:02:45.019-06:00Thanks, Hayley-Eszti! You, too! Thanks, Hayley-Eszti! You, too! alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-6093869155732521322014-01-11T11:39:02.244-06:002014-01-11T11:39:02.244-06:00Happy New Year Alyson, I hope this year brings you...Happy New Year Alyson, I hope this year brings you good health and lots of happiness. All the best!<br />Hayley-Eszti<br /><br />www.hayleyeszti.blogspot.co.ukhayleyesztihttps://www.blogger.com/profile/14517966025318167347noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-79358857496502404622013-11-27T11:18:44.166-06:002013-11-27T11:18:44.166-06:00Hi Sienna Christie - Thanks for visiting my blog. ...Hi Sienna Christie - Thanks for visiting my blog. I wish I could say my problem has been completely resolved, but unfortunately it has not. Things did improve significantly for a while (and they're still much better than before), but unfortunately the demise of my marriage and waning support from my now ex-husband led to a kind of backtracking in my progress. That said, with the support of my new partner, I still have hope that things will be resolved fully in the future! alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-65741625595010872412013-11-18T11:17:33.689-06:002013-11-18T11:17:33.689-06:00It's been a year now, and I do hope you're...It's been a year now, and I do hope you're feeling better. At first, I really felt odd about the physical therapy on your vagina. However, I asked some friends about it, and they've tried the treatment. Good thing you've got a caring ob-gyn at your side. It's important to have somebody who can make you feel comfortable while undergoing the procedure. How are you now? I do hope the therapy gave you positive results. :) <br /><br />Sienna <a href="http://www.ftlauderdaleortho.com/" rel="nofollow">@ FtLauderdaleOrtho.com</a>Sienna Christiehttps://www.blogger.com/profile/07299686704281946616noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-33614619367251527502013-11-13T02:26:38.328-06:002013-11-13T02:26:38.328-06:00There's a new treatment for dyspareunia to cau...There's a new treatment for dyspareunia to cause stem cells to generate new healthy tissue. The procedure is called o-shot which has been very effective with my patients.<br />More can be seen at OShot.info<br />Hope this helps.<br />Charles Runels, MD<br />Charles Runelshttps://www.blogger.com/profile/17648540221176163449noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-11399846453518109702013-11-02T18:16:39.637-05:002013-11-02T18:16:39.637-05:00Hi Cam - I'm not sure if your comment is spam ...Hi Cam - I'm not sure if your comment is spam or a real inquiry. Feel free to post your question in the comments section. Thanks for visiting! alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-3638725367309800122013-11-02T18:15:03.495-05:002013-11-02T18:15:03.495-05:00Hi AM - Thank you for visiting my blog. I'm s...Hi AM - Thank you for visiting my blog. I'm so sorry that you've had to go (and are going) through so much. You're so very right that it's comforting to know we're not alone in our suffering and frustrations on our journeys to recovery. I really hope that you find answers. Don't give up! <br /><br />Hi Hayley-Eszti Szucs - Thanks so much! I've been on 400mg CoQ10 two times per day (800mg total per day) for over a year now. I can't remember exactly how long for sure, but it definitely took me several months before I noticed an improvement. CoQ10 is very expensive, but it's worth it to me because it changed my life. I think of it as more of a medication than a supplement because of how much it helps me. alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-85162121608740477692013-11-02T14:35:04.161-05:002013-11-02T14:35:04.161-05:00I'm sure we can all forgive your absence as yo...I'm sure we can all forgive your absence as you have a pretty good reason behind it! So happy to hear you are doing so well! Can I ask what dosage of CoQ10 you have been taking? I have been taking 30mg for about 8 or 9 months and my energy levels have increased slightly but not enough to make a big enough difference on everyday life. <br />I hope you continue making such great progress. All the best to you!<br />Hayley-Eszti<br /><br />www.hayleyeszti.blogspot.co.ukhayleyesztihttps://www.blogger.com/profile/14517966025318167347noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-29526469676322551912013-11-01T22:55:15.536-05:002013-11-01T22:55:15.536-05:00I noticed that when I added CoQ10 (100 mg. about a...I noticed that when I added CoQ10 (100 mg. about a year ago), I also had an increase in energy. I'm worried yet excited, because on Monday I finally have an appointment with a neurologist. I have so many issues (as I'm sure you understand!) but lately I've had horrible neck pain, migraines, been getting dizzy, snapping awake really early in the morning for no reason, being "out of it" more than usual, having tremors, and more. I saw my chiropractor and my spine is in line so I don't know what's going on. Nothing has changed. I do have known back problems, but my physiatrist is being a pain about ordering an MRI of my neck. I spoke to my rheumatologist about these new odd symptoms and she was nice enough to refer me to a neurologist (even though it took them a month to call me and then at least 2 months to get an appointment). I just hope he takes me seriously (it's not anxiety causing all these symptoms like some doctors think)! Best of all, I lose my insurance around the end of this month. I'm going to try to make it through to January with no coverage but I don't see that working out too well. Sorry for the book I just wrote (lol), I just am glad people on here actually listen to and believe me. Also, I hope it's sort of comforting to you to know you are not alone and by sharing our stories, that we can try to help each other.AMnoreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-2094102110019409532013-10-31T22:17:06.266-05:002013-10-31T22:17:06.266-05:00Hi Tracey - Thanks for visiting my blog. I'm ...Hi Tracey - Thanks for visiting my blog. I'm sorry you had to go through such an ordeal! It's been a year since that infection, so I can't remember all the details. However, I do know that it took me a while to get back to my normal. I had to ease back into things slowly. I wish you a happy and healthy bladder! :)alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-41990438735845155032013-10-08T11:03:01.516-05:002013-10-08T11:03:01.516-05:00Hey I have a quick question about your blog, could...Hey I have a quick question about your blog, could you email me when you have a chance? Thanks! –CamAnonymoushttps://www.blogger.com/profile/13224008685151269525noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-3425661228763284622013-10-07T01:24:57.241-05:002013-10-07T01:24:57.241-05:00I had the same exact thing happen to me. I can'...I had the same exact thing happen to me. I can't understand how it happened. I was in the hospital with IV from Saturday to tuesday. I went home with the IV and the visiting nurse continued the treatment till the next Monday. I was lucky it didn't et in my blood stream, it was E coli. What I want to know is why am I still so tired? I want to get back to working out at the gym but I still don't have all my energy. How long did it take you get recover completely? Hope we never have to go through this again! TraceyTishhttps://www.blogger.com/profile/07227371395171002640noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-51341473293676919962013-09-09T15:01:21.833-05:002013-09-09T15:01:21.833-05:00Hi Alyson,
I found your blog and think it is an in...Hi Alyson,<br />I found your blog and think it is an incredible resource for women suffering from chronic fatigue syndrome/ME. I appreciate that your blog is giving women with this issue important information and resources.<br />My name is Kendra and I am the Outreach Coordinator for Womens Wellness Publishing. I want to let you know that our lead author, Susan Lark, M.D. has just written a fantastic new book, Dr. Susan’s Solutions: The Chronic Fatigue Cure. http://amzn.to/1aWvu1e<br />Her new book is an incredibly helpful guide to healing from chronic fatigue syndrome/ME and restoring your energy, vitality and joy of living. Alyson, you are not alone. Many people suffer from the same condition you do.<br />In the book, she shares her all natural treatment program that has helped thousands of her patients eliminate their debilitating symptoms. Most of her patients have been able to heal from their chronic fatigue and restore their energy and vitality without the use of toxic drugs and hormones with her all natural treatment program.<br />Dr. Lark posts wonderful health features for women on our Womens Wellness Facebook page and she has many devoted fans. http://on.fb.me/19MEZAC<br />Her book also has great information on the major causes of chronic fatigue, the latest medical diagnostic techniques and the pros and cons of drug therapies. It is an all around great book and we really look forward to sharing it with you.<br />We'd love to have Dr. Susan's Solutions: The Chronic Fatigue Cure featured in your blog. We would be happy to send you a copy of the book and provide any additional support that you would like.<br />I look forward to hearing from you! I can be reached at my email address, kendra.wwp@gmail.com<br />Best regards,<br />Kendra<br />Anonymoushttps://www.blogger.com/profile/06965703697057070225noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-57499122298843538362013-08-20T20:59:25.939-05:002013-08-20T20:59:25.939-05:00Hi readyforwhat7 - Thanks! No, I haven't noti...Hi readyforwhat7 - Thanks! No, I haven't noticed my skin being particularly elastic or stretchy. My main skin-related symptoms are rashes and being slow to heal. <br /><br />Excellent question about giving an update on my main symptoms and complaints. I should write a blog post with my latest health stuff. I still need to do my Part III regarding my latest health developments, but I will plan to do an overall health update soon. alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-80747987894325173232013-07-28T15:49:24.205-05:002013-07-28T15:49:24.205-05:00Alyson! That is great news! You deserve to feel ...Alyson! That is great news! You deserve to feel better and I am so happy for you. Question: have you noticed anything strange about your skin? Was it especially elastic or stretchy?<br /><br />Also, could you please let us know what are your main symptoms/complaints? In your "About Me" section you talk about a general fatigue and difficulty climbing stairs. Anything else?<br /><br />Please keep us updated on your progress!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-60052941287977898722013-07-28T13:44:31.044-05:002013-07-28T13:44:31.044-05:00Hi Anonymous - I'm so sorry you are suffering ...Hi Anonymous - I'm so sorry you are suffering so much. Congratulations on finishing college and getting a job; that is quite a milestone for someone suffering from chronic health problems! I know that's not much consolation when you're feeling so crummy, but I still wanted to acknowledge your achievement. <br /><br />I am not a doctor, so I can only make suggestions based on my own experiences. I'm assuming you've been checked for the "usual" problems (thyroid problems, lyme disease, mono, anemia, other nutritional deficiencies, etc.), but if not it might be worth it to see your general practitioner to ask for these tests. <br /><br />Have you been tested for autoimmune diseases (i.e., ANA and/or other tests) or seen an endocrinologist to check for endocrine imbalances? (Your general practitioner can order the ANA test.) I myself have a positive ANA, and my endocrinologist diagnosed me with pre-diabetes. It should be noted that I am not overweight and eat a very healthy diet, so I do not fit the typical profile of someone with pre-diabetes. <br /><br />Have you seen a neurologist for your headaches? Finding the appropriate medication to help with your horrible headaches could improve your quality of life. In my own experience, I had to try several different headache and migraine medications before my doctor and I found one that worked for me. <br /><br />You might also want to find a doctor who specializes in ME/CFS. Here's a website that helped me find a doctor: http://www.co-cure.org/Good-Doc.htm. I no longer see my ME/CFS doctor; however, she was a great help when I first got sick. <br /><br />My heart goes out to you, and I wish you all the best! alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-35817759962037216132013-07-28T13:20:28.502-05:002013-07-28T13:20:28.502-05:00Hi Hayley-Eszti - Thanks for the nice note! I wis...Hi Hayley-Eszti - Thanks for the nice note! I wish you good health. alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-42637817156486031382013-07-28T11:40:53.909-05:002013-07-28T11:40:53.909-05:00Hi Alyson HELP I am desperate 23 year old female s...Hi Alyson HELP I am desperate 23 year old female suffering for years finally got through college got a job and worried that I may lose it due to health just missed 3 days as I wa so sick. I have seen immunologist and hematoligst for years all are normal. My symptoms -swollen lymph nodes in neck that come and go every few months, unbearable headaches, sore throats and extreme fatigue to the point I can't work. Any ideas?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-72345207210627149372013-07-27T13:29:25.566-05:002013-07-27T13:29:25.566-05:00So happy to hear you are feeling the best you have...So happy to hear you are feeling the best you have in a long time. I look forward to reading your next post as to why. Long may it continue,<br />Take care, Hayley-Eszti<br /><br />www.hayleyeszti.blogspot.comhayleyesztihttps://www.blogger.com/profile/14517966025318167347noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-36571360035273008642013-07-23T14:25:18.348-05:002013-07-23T14:25:18.348-05:00Hi cinderkeys - Thanks for checking in! Yes, the ...Hi cinderkeys - Thanks for checking in! Yes, the potholes have become much smaller both figuratively and literally. I'm doing really well these days, and the city repaired most of the potholes on the street I wrote about! :) alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-64802503595149588342013-07-23T14:23:49.011-05:002013-07-23T14:23:49.011-05:00Hi Melissa B - That's good to know. Thanks fo...Hi Melissa B - That's good to know. Thanks for the info! I'm pretty sure the lab was LabCorp or Quest, and I unfortunately don't have a copy of the test results. I might ask to get it done again at some point, though I have some other avenues I'm checking out at the moment! alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-42839673636117229172013-07-23T14:21:35.439-05:002013-07-23T14:21:35.439-05:00Hi Lauren - Yes, I'm familiar with Dr. Teitelb...Hi Lauren - Yes, I'm familiar with Dr. Teitelbaum. He has interesting ideas, some of which I've tried (particularly supplements). Thanks for sharing! alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-20656097618049604332013-07-23T14:18:55.536-05:002013-07-23T14:18:55.536-05:00Hi readyforwhat7 - It's sad when people you ho...Hi readyforwhat7 - It's sad when people you hope would be allies or at the very least supportive of you are the opposite of what you need. I hope you get some answers! <br /><br />Hi nopostergirl - You had me laughing with your comment! Thanks for the accurate, yet humorous response. alysonhttps://www.blogger.com/profile/12965588211524276512noreply@blogger.comtag:blogger.com,1999:blog-2962097063569112990.post-51305993292827731262013-07-09T00:39:19.190-05:002013-07-09T00:39:19.190-05:00Hi,
I'm four months behind on all the blogs I...Hi,<br /><br />I'm four months behind on all the blogs I follow, so I only read this now. I'm so sorry. Hopefully the potholes have become smaller since you wrote this.cinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.com