Tuesday, September 22, 2009

Research Alert: Healthy Volunteers Needed for Georgetown CFS Study

Do you or does someone you know live near Washington, DC (or are you willing to travel there at your own expense)?

Georgetown University is conducting a research study called "Proteomics of Cerebrospinal Fluid in Chronic Fatigue Syndrome."

I have volunteered for this study (will post an update about this soon); however, they still need many more HEALTHY individuals between the ages of 21 to 65 who are willing to undergo a lumbar puncture (a.k.a. spinal tap) and other minor procedures including blood tests. There is some financial compensation for completing the study.

Call 202-687-8231 or email cfsresearch@georgetown.edu if you are interested.

Please spread the word. Forward this post, email your friends and loved ones, post info on your blog or message boards, or just stand outside and shout about it.

This is the kind of serious research we need more of!

Today's Activities: work. Today's Most Annoying Symptoms: exhaustion, muscle fatigue, headache, nausea, light headed.

Mood (10 is best): 6
Energy (10 is best): 3
Physical Discomfort (10 is worst): 4


Lori said...

Thank you so much for commenting (on my blog post) about your experience with flu shots. It really helped. We're traveling this week and I don't want to have problems, but but your comment reinforced my thinking that she will get a flu shot next week when we return.

You were so helpful.

cinderkeys said...

Wow. I wonder how they go about finding their healthy subjects. That sounds like a pretty painful procedure.

Thanks once again for posting another medical study. Reading it, I suddenly realized that these studies also provide a means of subtle activism.

Here's how it would work. First, keep on the lookout for human interest stories about ME/CFS, fibro, etc. They'll often imply that there are psychological factors involved, or mention that there's a "controversy" over whether the disease is physical in origin.

If the article gives you the ability to comment, you can post a "volunteers needed for X study" there. Words like "proteomics" and "cerebrospinal fluid" might get people thinking that, hey, maybe it *isn't* just in people's minds.

I dunno. Maybe it's too subtle. But what do you think? Something to try?

alyson said...

Glad I could help, Lori.

I think you're onto something, cinderkeys!

Buy Soma said...

I think this is a wonderful opportunity for people with spinal problems. Pity, it's too far away. Will forward this to people I know in DC.