Well, today is Day Three of my latest low-grade fever. It's bad enough that I feel really awful (more so that usual, that is), but not bad enough for me to stay home from work (if you've been following my blog closely for a while, you'll know I'm short of sick/vacation leave).
I've been meaning to post the results of my most recent vitamin D and iron (ferritin) levels for a while, but I kept forgetting (brain fog, you know). Both my ferritin and vitamin D levels went down a little since the last test.
My ferritin level was measured at 38 ng/mL. Previously, it was 41 (last test), 50, and 17 (first test). My GI doctor would prefer to see my ferritin level at around 70, though she's just happy with it being so much higher than 17. Currently, I'm taking high levels of prescription iron only every other day because taking it every day caused massive constipation. I think I'm destined to be on the lower side of normal when it comes to iron levels.
My vitamin D level was measured at 40 ng/mL. Previously, it was 49 (last test), 41, and 29 (first test). My GI doc would like to see a level higher than 50. I'm going to up my dose of vitamin D to 2,000 IU per day (I've been taking 1,000 IU per day since my first vitamin D test).
In my July 2 post Human Pin Cushion, I mentioned a micronutrient blood test for which I had blood taken. Over a month passed, and I didn't hear anything from my doctor or the lab. I called my doctor's office who, in turn, called the lab who said that the sample had been damaged so they couldn't run the test. Great. They didn't even bother to inform anyone about this.
I ended up going back to get blood drawn for this test a week or so ago (can't remember exactly when). I'm still looking forward to the results because they'll indicate if I'm missing essential vitamins or minerals.
HUMAN GUINEA PIG OPPORTUNITIES (a.k.a. research)
See Hoping to Be a Human Guinea Pig for background. I still have not had the opportunity to give a single drop of blood or other bodily fluid for the sake of CFS research. This disappoints me. Researchers at both Georgetown and the University of Illinois - Chicago have told me that they'll get back to me about my possible participation. So far, I've heard nothing. Nada.
On the upside, I'm participating in a fatigue study through the University of Utah. I've also submitted surveys for the University of Michigan's Chronic Illness Survey and the National Fatigue Survey through the Florida Institute of Technology's Fatigue Management Institute. I'm interested in looking into the University of New England - Australia's fatigue study. I plan to do that when I have the mental energy.
I'm really much bigger on the blood and bodily fluids kind of research, but at least surveys are better than nothing.
MY NEW TREATMENT PLAN (methlyation protocol)
On July 13 I announced that I was Starting a New Treatment Plan. Unfortunately, there's not much to report yet because I haven't gone back to get my glutathione level tested again. I'm still taking the doses I listed in my treatment plan post every other day.
Physically, I don't feel any improvement, but that doesn't necessarily mean I'm not improving. According to the research and anecdotal information from others on the protocol, some people go through a period of "detox" that makes them feel worse (or just not better) before they actually start to feel better.
I do know that my body chemistry has changed or is changing. I used to feel cold very easily nearly all the time (even when others felt warm). Now I get what seem like hot flashes, where my face flushes red and I start to sweat profusely.
All I can say is that I'm not giving up, and I will report any changes in a future post.
Today's Activities: work. Today's Most Annoying Symptoms: headache, nausea, dizziness, muscle fatigue, sinus pressure, low grade fever.
Mood (10 is best): 6
Energy (10 is best): 3
Physical Discomfort (10 is worst): 6