Disclaimer: My brain fog is acting up today, so I can't remember what I've already said about the following topic (and I'm mentally too tired to read through my blog to find out).
I'm really excited because I'm getting closer to being able to participate in worthwhile CFS research. I use the term "worthwhile" because there is so much junk CFS research out there. The more scientists know about this disease, the more likely they will be able to come up with some answers.
I've received the informed consent documents from both the Georgetown study and the University of Illinois at Chicago study.
I spoke with the Georgetown representative today and the next step is to schedule my visit to Washington, DC. The rep is supposed to email or call me later this week with available dates.
My next step in the UIChicago study is to have a phone interview. They'll call me after they receive my signed informed consent documents.
Lately I've found myself wishing more often that I were well. I've also been feeling a bit resentful toward my disease. This weekend in North Dakota was particularly bittersweet. I was able to see my family (and especially my nieces), but I spent so much time sleeping or restricting my activities that I felt left out. And that's another thing. I've been feeling left out an awful lot lately.
I think I so badly want to participate in CFS research is because I want to do my part to find a cure (or at least a treatment) for CFIDS. My reasons are selfish; I am getting desperate for some relief.
I've been sick for my entire adult life. Can't a girl get a break?!
Today's Activities: work. Today's Most Annoying Symptoms: exhaustion, headache, low fever, sore throat, achy body, brain fog.
Mood (10 is best): 6
Energy (10 is best): 4
Physical Discomfort (10 is worst): 6