Sunday, August 2, 2009

Research Alert: More Research Opportunities

It occurred to me that it could be useful to post additional CFS research opportunities. These research descriptions are from the U.S. National Institutes of Health ClinicalTrials.gov website. The studies were listed as Chronic Fatigue Syndrome open studies; however, I don't know how often the research information is updated or if all these studies are still in fact accepting volunteers. Proceed at your own risk...

United States

1. Vanderbilt University in Nashville, Tennessee is recruiting both CFS patients with Postural Tachycardia Syndrome (POTS) and healthy subjects between 18 and 65 years old to participate in a study called "Autonomic Nervous System and Chronic Fatigue Syndrome."

2. Georgetown University in Washington, DC is conducting a research study called "Proteomics of Cerebrospinal Fluid in Chronic Fatigue Syndrome." They are recruiting both CFS patients and healthy individuals between the ages of 21 to 65 who are willing to undergo a lumbar puncture (a.k.a. spinal tap).

3. The pharmaceutical company Hemispherx Biopharma is recruiting CFS patients ages 18 to 65 from across the United States to study the efficacy of the drug Ampligen in Chronic Fatigue Syndrome.

4. Duke University Medical Center in Durham, North Carolina is recruiting CFS patients with insomnia ages 21 to 65 for the study called "Behavioral Insomnia Therapy With Chronic Fatigue Syndrome."

5. Charles Drew University of Medicine and Science in Los Angeles, California and Pfizer are recruiting CFS patients and healthy subjects ages 18 to 49 for the study "Use of Sildenafil (Viagra) to Alter Fatigue, Functional Status and Impaired Cerebral Blood Flow in Patients With CFS."

6. University of Cincinnati in Cincinnati, Ohio and Eli Lilly and Company are recruiting CFS patients 18 to 65 years old to participate in the study "Double Blind Trial of Duloxetine in Chronic Fatigue Syndrome."

Europe

1. Haukeland University Hospital in Bergen, Norway is recruiting CFS patients between 18 and 60 years old to participate in a study called "Drug Intervention in Chronic Fatigue Syndrome" in which it will test the efficacy of the drug Rituximab.

2. UMC Utrecht, The Netherlands Organisation for Health Research and Development (ZonMw) (The Netherlands), and Innovatiefonds Zorgverzekeraars (Rvvz) are recruiting healthy subjects and CFS patients ages 12 to 18 to participate in a study called "Efficacy of Web-Based Cognitive Behavioural Treatment for Adolescents With Chronic Fatigue Syndrome."

Today's Activities: home. Today's Most Annoying Symptoms: exhaustion, painful sore on tongue, active eczema on left armpit, left hand, and right ankle, brain fog.

Mood (10 is best): 6
Energy (10 is best): 3
Physical Discomfort (10 is worst): 3

4 comments:

Renee said...

Wow
Great information you have shared here, Alyson.

Jo said...

I agree, very helpful to know what research is going on.

Sue Jackson said...

Viagra for CFS?? Can't wait to hear the results of that one!

I know of another study which my son and I are participating in - I just got permission to post the info on my blog - hope to get to it tomorrow.

Sue

alyson said...

Thanks! I'm glad you found the information interesting. I'm hoping it helps to get a few people to volunteer for a study or two (if they live nearby, of course). I certainly would love to see the results of some of these studies!