The CFIDS Association of America created this moving video using responses from 1,784 CFS patients to the question: "What would you do if you were completely well tomorrow?"
The CFIDS Association has also created a new website called Solve CFS, as part of a campaign to raise $5 million for research by the end of 2010. If you look closely at the website's banner, you'll see Kenny's and my photos. :)
Today's Activities: traveling for work. Today's Most Annoying Symptoms: exhaustion, muscle fatigue, nausea, probable low-grade fever, itching.Mood (10 is best): 6
Energy (10 is best): 2
Physical Discomfort (10 is worst): 4
4 comments:
When I have time, I'm going to watch this. I wonder if they included the testimony of Laurel, another blogger who writes about CFIDS.
I saw your picture at the Solve CFS site - right up front, alphabetically! I need to take a photo of the boys and I to post there.
And thanks for posting this video (I really need to learn how to do that). I've been reading the What Would You Do posts from CAA on Facebook but I hadn't watched the video yet. It's great. BTW, I'd spend all day outside with my kids, hiking and finally take them backpacking!
Sue
Thank you for posting this. While it made me cry for what I can't do, I want others to see it so they understand how devastating CFS is.
Thanks for your comments, folks! Hi Angel - Thanks for visiting my blog. The video made me cry, too. I can't wait to be healthy again. I've got a really long list of things I'd love to do again (and a long list of things to try for the first time)!
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